Provides details regarding a resource’s benefits, services, or purpose.
As Lynn’s multiple sclerosis has progressed over the years, we have gone through many different mobility assistive devices. Each has been a tremendous help but at each stage along the way, Lynn has resisted using them. Looking back, I wonder if he knew then what he knows now would it have made a difference? For …
About this time last week, I was experiencing discomfort in my abdomen. As the hours progressed, the pain got worse until eventually, it was so intense that I was vomiting. Unable to sit up, I was lying on the floor moaning in pain with no access to help within reach. Fortunately, Lynn heard my moaning …
What Resources are Available if I’m Not Around Anymore? Read More »
With Relapsing-Remitting MS (RRMS), Lynn would have an exacerbation that could last days or weeks, but he would return to “normal” at some point, and nothing much changed. With Secondary Progressive MS (SPMS), he stopped getting better. He happened to be in a clinical trial at the time he transitioned to SPMS, so he was …
Helpful Resources for Supplies, Equipment or Information Read More »
When I took on being a full time caregiver, I knew I was taking on full responsibility for skin care, elimination, nutrition, hygiene, assistance with activities of daily living and even physical therapy. What I hadn’t counted on was taking on my husband’s role of maintenance mechanic for our home. Having a medical background, I’m comfortable with …
I’ve had the opportunity this week to read a few blogs from other caregivers and last week to attend a caregiver support group. In hearing the stories of other caregivers, I started thinking about what it meant to be a caregiver. There’s certainly the obvious answer, “to give care to someone periodically or full-time,” but …
The life of a caregiver and their “caree” is always in such a delicate balance that I think of that old saying, “don’t tip over the apple cart.” When I hear that analogy, I have a vision of a small cart piled high with apples, holding its own until someone puts one too many apples …
One night this week, just about bedtime, I became very nauseated and started feeling really lousy. It had the feel of when I’m about to have an allergic reaction to something. I have lots of food allergies and I often find out about a new one through several hours of agony and being …
In late May 2011, Lynn became very sleepy. He was so tired he could hardly stay out of bed. I listened to his lungs, and they sounded very noisy in some areas and almost no movement in others. His home health nurse thought we should go to the ED, and finally, even he agreed. We …
