Home of all blogs previously written by Donna Steigleder either for this website, multiplesclerosis.net, or MSCaregiversharing.com
As Lynn’s multiple sclerosis has progressed over the years, we have gone through many different mobility assistive devices. Each has been a tremendous help but at each stage along the way, Lynn has resisted using them. Looking back, I wonder if he knew then what he knows now would it have made a difference? For …
Plans to Be All-Things-To-All People I diligently worked to create a website to support caregivers for the past two years. Initially, I planned to have an elaborate website that was all-things-to-all-people, i.e., a caregiver’s dream come true. For months, I learned all sorts of things about website design and other computer necessities. I made lots …
Equal Treatment For several months, we’ve seen groups proclaiming their rights for equal treatment under the law and by others. While I strongly disagree with the violence displayed in asserting those rights, I agree with the message. I believe all persons have a right from conception to be treated with respect and dignity. God …
What’s the Process to Baptism Someone Immobile at Home? Last year, my husband asked me to help him arrange a baptism ceremony at our home. Though baptized as a child, he wanted to supplement his childhood understanding with a reaffirmation of adult faith. Lynn has Primary Progressive Multiple Sclerosis (PPMS). As his condition progressed rapidly …
Quarantine is Over Daily, the news carries reports of another state entering Phase One of returning to normal following the massive shut-down of the country to protect the vulnerable population from the Coronavirus. At this point, I think most, if not all, states have reopened markets that are not high-risk. People are emerging from …
Now That You’re out of Quarantine, Don’t forget those Left behind Read More »
Caregivers never take a break because though they may not be physically present, mentally, they do not let go of their responsibilities. Relaxation is extremely difficult for a lifetime family caregiver because being “on” and ready to respond in an instant is a part of their innermost being. They do not have an off switch.
Since multiple sclerosis often strikes in early adulthood, many times, the family unit includes children who mature into adulthood, watching their parents become progressively weakened by the disease. Such was the case in our family. Lynn had a ten-year-old son who lived with his ex-wife when we married in 1997. Lynn’s son was a secondary caregiver Lynn’s diagnosis …
I’ve been struggling since December 26 with being both the caregiver and needing care myself. I don’t usually get sick because I’m cautious regarding exposure to contagious situations. For example, I screen those who come to our home both for their symptoms and their possible exposure to others, and I do most of our shopping online. …
Once upon a time, the world was a different place in America. Sons and daughters grew up and married and lived in or close to the same neighborhoods where their parents, aunts, uncles, and grandparents lived. Neighbors knew neighbors. Couples got together with friends on Saturday night, and children grew up playing in neighborhoods where …
Did you know that delirium was a symptom of a urinary tract infection? Neither did I, but it’s something I’m learning to recognize. Apparently, I’m not the only one who has experienced its impact because there was an article on the phenomenon in one of my nursing magazines last month. My husband Lynn’s doctor made the …
