Home of all blogs previously written by Donna Steigleder either for this website, multiplesclerosis.net, or MSCaregiversharing.com
With Relapsing-Remitting MS (RRMS), Lynn would have an exacerbation that could last days or weeks, but he would return to “normal” at some point, and nothing much changed. With Secondary Progressive MS (SPMS), he stopped getting better. He happened to be in a clinical trial at the time he transitioned to SPMS, so he was […]
Helpful Resources for Supplies, Equipment or Information Read More »
I was talking to a fellow caregiver this week about an event that occurred to him and he made the comment, “Yeah, I’m just waiting for the next shoe to drop.” That comment really struck home. I confess; I’m like that most of the time. Lynn, my husband and the person I provide care to,
Waiting for the Next Shoe to Drop Read More »
It’s been the talk for days. “Have you heard? We might get a foot of snow.” The prediction was for it to start before sunrise on Friday, then changed to 10 a.m., and then to 1 p.m. Two days before the snow was predicted, lines at the grocery store were wrapped around and down aisles.
I had a scare this week thinking that I was about to experience the joy of food poisoning. As I was giving Lynn his bath, I started feeling really nauseous. Then my stomach started burning and feeling crampy and I started sweating—all the tell-tale signs of food poisoning when you’ve recently spent hours sampling leftover
I Can’t Just Get Sick Read More »
Christmas is now officially over and it’s with mixed emotions that I say goodbye to it for another year. I love the Christmas holidays. I decorate everything in sight. Since we don’t go out very much, we miss most of the festive sights so I bring it to us instead. I can’t outline the house
We Survived Christmas, But Just Barely Read More »
I get a lot of offers to help; some sincere and others just being polite. What I have found is that people want to help but they don’t know how and realistically, many have their own problems and challenges so they can’t help in a way that involves time or money. While I really could
No, I’m not talking about the “take no prisoners” rules but instead am referring to rules associated with social engagements. This is the holiday season and there are family gatherings and parties at work or at friends’ homes that are cherished events and a great way to keep those social connections. However, participating can be
Rules of Engagement Read More »
I was listening to a Bible commentary today, and the commentator was talking about how God takes us through trials in life that prepare us for events yet to come. He described how precious metals are often put into fire for purifying so that the impurities are removed and the remaining metal is stronger and
What do you see when you see me? Do you see what I’ve come to be? Do you see the mask I wear That hides the truth of all I bear? Do you see my strength, my skill My constant running all uphill? Do you see my desperate hope That with each change I still
What Do you See When You See Me? Read More »
I am obsessed with Lynn’s skin. Many years ago I worked as a home health nurse and I saw some terrible bedsores that started out small and then progressed to craters. Some of the patients had their entire backsides destroyed. Most of the breakdown, I expect, was due to inattention but some were also due
Struggles with Skin Care Read More »
