Donna’s personal experience about being a caregiver for someone who has MS.
When I tell friends, family, acquaintances, etc. what I’m up to these days (i.e., being a full-time caregiver for my husband while working full-time from home) it’s amazing how many people either have someone with MS in their family or know of someone with MS. What’s even more amazing, however, is how different […]
“I Know Someone With MS…” Read More »
Lynn has started a new MS medication–at least new for him. It’s Rebif, an interferon beta-1a therapy that is supposed to slow disease progression, reduce the development of lesions, and reduce exacerbation occurrences. Sounds like a good drug but it’s also used primarily for relapsing-remitting forms of MS and Lynn maybe into secondary progression now,
Free to a Good Home…with patience Read More »
When I was a child, I loved working pencil and paper puzzles. You know the ones I’m talking about? There were dots, numbers, or letters on a page and as you connected the dots, a picture emerged. What I did not realize at the time was that doing those pictures was actually very educational. I
As I have been reading blogs written by other caregivers or MS patients, that joke that goes around “How many xxx does it take to….” comes to mind. When Lynn was first diagnosed, I had a basic knowledge of MS and figured that he would have a neurologist to manage all his care but what
How Many Specialists does it take to Treat One MS patient? Read More »
One of the readers of my blog shared that she had heard of a diet to help people with MS. She had a video of Terry Wahl talking about it. I was amazed as I watched the video that it was the exact diet that Lynn’s dietician has him on. He started this diet the
I’ve always disliked change. I like things to be predictable and I like feeling in control. I want to know what I’m responsible for, be able to plan my immediate future with some degree of probability, and I like to finish jobs and cross them off my list. Change doesn’t come easy for me but I eventually
Too many changes in too short a time Read More »
Lynn saw the hematologist this week to try to find out why his hemoglobin goes up and down. When we got the lab work back, his hemoglobin had dropped one point which wasn’t that bad actually. So then why does he get so cold so often? The good news is that the doctor ruled out
Not anemia? Guess it's MS… Read More »
Just when you think things are getting better, they start rolling down hill again… Lynn’s dietician put him on a special MS diet with the purpose of improving absorption of nutrients and more importantly, iron since he struggles with iron deficiency. He has to eat three cups of green leafy vegetables per day, three cups
What a roller coaster! Read More »
Every time Lynn goes through a spell of feeling bad, I wonder, “Is this MS or something else?” MS is so sneaky. It affects so many components of the body and mimics so many other things that it’s not always easy to tell. Like now. Something is wrong with Lynn. He associates it with when
MS or something else? Read More »
I received my annual performance review today. I had mentally prepared myself for getting a rating less than what I usually get and was even afraid it might be significantly less but I was pleased…and disappointed…and sad…and concerned. Not to brag but I’m very good at my job. Several years ago I was nominated for
Adjusting to being less than the best Read More »
