Ever since Lynn became totally disabled, I’ve had lots of encouragement to get some help. I know I need help. My muscles hurt from overuse; I get frustrated trying to do everything I need to do; I know that there is a high risk as a caregiver that I will have a shorter lifespan. So […]
Why is Getting Help so Hard to do? Read More »
Lynn has started a new MS medication–at least new for him. It’s Rebif, an interferon beta-1a therapy that is supposed to slow disease progression, reduce the development of lesions, and reduce exacerbation occurrences. Sounds like a good drug but it’s also used primarily for relapsing-remitting forms of MS and Lynn maybe into secondary progression now,
Free to a Good Home…with patience Read More »
I have always enjoyed a good movie. It’s one of the things I miss about not being able to get out and go places now. However, you don’t have to go out to see a movie any more; you can now do it in the comfort on your own home and with the benefit of
Going to the Movies Read More »
When I was trying to decide what to write about this week, I was having a hard time coming up with something unique. I’ve touched on many of the hardships and challenges associated with being a caregiver but as I look out the window at all the new growth for spring, I am also thinking
I follow the writings of another caregiver, Patrick, (http://caregivinglyyours.blogspot.com) who has been caring for his wife who has MS for 22 years. Patrick recently discovered he had cancer and one of the comments he made in his blog struck home with me. Patrick described how he hid the truth of his illness from his wife
The Secret Life of a Caregiver Read More »
If you are a caregiver for someone who is totally dependent on you for everything, you know that there is no such thing as a “quick run” anywhere when you take the person you are caring for with you. Today, Lynn and I had an appointment with an attorney to sign our wills, power of
Short Trip but Major Planning Read More »
I thought I was beyond grieving about how things had changed. …or maybe we are never completely finished grieving over the loss. It seems to come back when you’re not expecting it which in many ways makes it harder to handle. Here’s what brought it on this week. Every morning as I’m preparing Lynn’s morning
Grieving over things lost Read More »
I’m going to be a grandma for the first time in June! My daughter is having a little boy and I’ve been more than a little excited since the first moment I heard the news (which was about two days after she knew she was pregnant). She and her husband are going to make great
It is Lynn’s belief that if he accepts that he has MS then he is allowing MS to “have” him. He says that he has seen enough people who we struggling along, maybe feeling bad, but still going along until they find out they have a serious condition. Then as soon as they accept that they
When I was a child, I loved working pencil and paper puzzles. You know the ones I’m talking about? There were dots, numbers, or letters on a page and as you connected the dots, a picture emerged. What I did not realize at the time was that doing those pictures was actually very educational. I
