I guess I think that I can do whatever I set my mind to and that my body and abilities will fall in line to make sure it happens. So I strive to be the best manager, employee, mother, wife, caregiver, and friend, I can be. I want to take care of everyone’s needs and […]
Reaching my Saturation Point – at least today Read More »
One of the greatest challenges of living with MS is how unpredictable each moment of your life becomes. I’ve shared that frustration before but I keep coming back to it because it’s such a constant struggle. Adapting to it not only means being prepared for the unexpected and being flexible but also being prepared to
Live in the Moment Read More »
May 27 at 3:51 p.m., my daughter gave birth to a beautiful son, Elijah Gregory–Eli for short. I was fortunate enough to share in the experience with her and her husband and at the moment of Eli’s birth, my daughter weep tears of joy, as did I. The decision to have a child was not
The Blessings of Children Read More »
Have you seen that commercial that asks, “Where do you hurt when you have depression?” and the answer is, “Everywhere.”? That came on while I was helping do something this week for Lynn and suddenly I realized that maybe I have “misdiagnosed” his symptoms. Lynn started on Rebif about two months ago. Over the past
Are you the type of person who keeps a calendar and checks their watch several times a day? I am. Since I can remember, I have been a clock watcher. I always had a sense of what time it was and what day. Not that I was always punctual but I always had my schedule
Time or Just One Continuous Move Forward? Read More »
Pressure. So much pressure. …but where does it come from? Me or “them?” This has been one of those weeks where I have felt I was under extreme pressure all week. The week started off with me getting up early on Monday for a conference call that wasn’t actually scheduled till Tuesday. I needed to
Sometimes I Feel Like I will Explode Read More »
I’ve been thinking a lot lately about respite care. I was asked to participate on a committee to look at creating a voucher program in Virginia for caregivers to obtain a small amount of financial assistance so they could afford respite care. I think the idea is wonderful. So many of us need a break
Financial Support for Home Care Read More »
Do you remember when the person you care for was first diagnosed with MS? You might not have been around them at the time, but I remember it very well. Those were very confusing days. I was almost sure Lynn had MS. He didn’t want to talk about it or give the disease any power
I Don't Know What I Don't Know Read More »
Out of the blue today, Lynn asked me to write about advocacy. He said, “please stress to your readers the importance of having an advocate or being one for yourself,” so here goes. When Lynn and I first got married, we were both VERY independent. Both of us had been married before and both of
If you are a full-time caregiver, or even part-time but the primary person responsible for someone else’s care, then you know all about paperwork. It’s another one of the unpleasant aspects of caregiving that we have to endure but are all too often unprepared for or unfamiliar with. I’m very fortunate in that I have
Keeping up with the Paper Work Read More »
